In typical Annmarie fashion, I had to get us up at 6am this morning, so she was up at 5am. Every other morning, I have to get us up at 5am and she decides to get up at 4am. After a pretty proficient morning, we finally arrived at the doctor's office. OK, so let's get down to brass tacks. Baby's eyes are smaller than her eye sockets -which is why she looks Asian. Doctors says she will grow into her eye sockets...As for the symmetry issue, the palsy we were told about when she was born, is still there. It will never go away. The doctor can do a surgery to take some of the skin out of her eyelids -after her eyeballs and eye sockets get to their full size. The tricky part of that is that if they take too much skin, she won't be able to close her eye. OK, now onto the scary part. The sclera is off colored because it is thinner than it should be. This could correct itself as her eyeball grows to better fit the eye sockets. This also could be due to a genetic disorder. Tomorrow the geneticists will call to set up an appointment to start genetic testing. The doctor said that he has seen cases of OI before and they are usually more off colored than Annmarie's, but that didn't mean she didn't have a mild case of OI, or a different genetic disorder.
After a through exam (including dilating her little eyes), they determined that she has really good eyesight and eyeball function. She did not like the exam and screamed a lot. But, she made it through and slept pretty well afterwards.
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